Privacy Policy

The Skeletal Dysplasia Group takes the privacy of its members and website users very seriously. The purpose of this policy is to explain how we control, process, handle and protect any personal data we collect from you or you provide to us. It relates to data that has been collected via phone, the website, email, letter or by any other means.

Should you have any questions please contact Nicky Bishop on nickybishop66@gmail.com

Skeletal Dysplasia Group

The Skeletal Dysplasia Group was founded in 1979 with the aim of promoting teaching and research into the rare developmental disorders of skeletal growth (osteochondrodystrophies). Members include professionals from all relevant branches of medicine and basic sciences including geneticists, radiologists, orthopaedic surgeons, paediatricians, genetic nurses, endocrinologists and rheumatologists. Membership is limited to medically or scientifically qualified individuals and is run by a committee of management formed by one orthopaedic surgeon, one radiologist and one medical geneticist, although others are co-opted - the aim being to reflect the principal disciplines of those undertaking the investigation and care of these disorders.

What data do we collect from non-members?

If you make an enquiry, we may collect data such as your name, address, email address, telephone number and details of your enquiry.

If you register for one of our events, we may also collect financial information (payment information).

What data do we collect from members?

Information we collect when you register for membership of The Skeletal Dysplasia Group include:

  • personal information such as your name, address, email address, telephone number
  • financial information i.e. payment information
  • professional information such as your title within an organisation or your grade

Information we collect when you register for one of our events include:

  • personal information such as your name, address, email address, telephone number
  • financial information i.e. payment information
  • professional information such as your title within an organisation or your grade

Information we collect when you apply for a grant:

  • personal information such as your name, address, email address, telephone number
  • financial information i.e. payment information
  • professional information such as your title within an organisation or your grade

Information we collect when you make an enquiry:

  • personal information such as your name, address, email address, telephone number

What do we do with your data?

We use your data to:

Communicate with you – this will include by email, telephone or letter, for confirmation of registration for events, membership newsletters and invoicing after registering and for payments of events

Administer your membership – we will use your collected date when communicating with you including for renewal information and newsletters

Administer your grant applications – we will use your personal data to assess your application and to notify you of the outcome of your application

Process your event registrations – we will use your personal data to process your event registration and communicate all aspects of that event to you

What is the legal basis for processing your data?

We will process your data as outlined in the previous section on the following grounds:

Legitimate Interests – where the collection and use of your personal data is in our legitimate interest.

Contract – where the collection and use of your personal data is necessary to fulfil our contract with you.

Consent – where you have consented to our use of your personal data.

Legal – we may also process your personal data if required by law.

When do we share your personal data?

We will never sell or trade your personal data. The data will be kept within the The Skeletal Dysplasia Group and will not be shared with a third party unless you have given specific consent for this

How long do we keep your personal data?

We will keep your data for two years or for the lifetime of your membership whichever is the earlier date.

We do not keep your personal data for any longer than is necessary to carry out the agreed purpose.

Where do we store your personal data and how do we secure it?

The Skeletal Dysplasia Group is based in the UK and we store all our data here using UK based web hosting. We do what is necessary to ensure that your data is processed so as to ensure appropriate security including protection against unauthorised processing.

Your rights in relation to your personal data

By law you have the following rights in relation to the personal data we hold about you:

Right of access to your personal data – in most cases this will be free of charge and must be provided within a month

Right to request correction of your personal data – changes will be made within a month.

Right to request erasure of your personal data – where the data is no longer necessary in relation to the purpose for which it was originally collected or processed, we will erase it.

Right to withdraw consent for the processing of your personal data – where we have relied on consent to process your data and there is no other legitimate reason to continue processing your data, we will erase it.

Right to object to processing of your personal data – where there is no other legitimate reason to continue processing your data, we will erase it.

Right to request the restriction of processing of your personal data – for instance when we are deciding whether a request for erasure is valid then we will continue to store your data but will not process it.

Right to data portability – this allows you to obtain and reuse your personal data for your own purposes across different services. It applies only to automated data you have submitted to us.

Right to contact the Information Commissioner's Office – if you're not happy about anything we ask that you contact us in the first instance to try and resolve any problems. You also have the right to contact the Information Commissioner's Office.

Cookie Policy

Our website places small text files, called cookies, on your computer to distinguish you from other users of the website. All our cookies are strictly necessary for the proper functioning of the website and are set in response to actions such as logging in and filling out a form.

Updates to this policy

This policy will be kept under continual review and changes may be made from time to time.

Updated: June 2019